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Back on track?

November 2, 2012

Maybe… I’m going to try to get back on track with posting. It was an interesting day today and I thought, I should blog about that. Then I thought, gee…. I haven’t done that in a while. lol

This morning Owen’s PT came over to work with him. We talked about a lot of ways to work on Owen’s walking skills. She asks me if I take Owen outside for walks in his walker. No, I haven’t. Honestly I hadn’t thought about doing it. It’s not that I’m against it, just hadn’t thought about it.

So, I’m thinking it sounds like a good idea and its sunny out. I get everyone dressed, jackets and shoes on. Laney gets strapped into Owen’s old tricycle. I get Owen’s walker out and put him in it.

Our driveway is a little steep so it takes some maneuvering and multiple trips to get everyone to the road. So far everyone is still thinking this is fun. After all, it is a great day out.

We get to the road and that’s when the fun stops. Owen doesn’t want to walk and Laney doesn’t want to hold still. I’m going back and forth trying to keep everyone happy while still accomplishing the goal of getting Owen some walking time.

After about 20-30 mins I gave up. It took about 15 mins to get everyone back in the house. All three of us are frustrated. Laney is crying.

Once we get in and jackets off I think… yeah, that’s why I don’t do this.

I know it was just a bad day and it won’t always be like that. We will try again another time. Hopefully with more success.

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Real Hugs

September 19, 2012

Last night for the first time ever I got TWO actual real hugs from Owen. They were actual, arms around my neck, squeezing hugs. In the past I had gotten forced hugs or grabbing out of frustration or nervous “hugs”.

These were the first “real hugs”. So exciting!!! I’m not sure why now. It might be because I have been giving him bear hugs to help with his sensory input. I really don’t care why though…. I’m just happy it happened. 🙂

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Rams Game

September 7, 2012

Our friends at TASK gave our family some tickets to the last Pre-season Rams game. Even though we already had a busy week planned we thought we would go.

So, after work we got everybody changed and loaded up to go to the game. Since the game started at 6 we were already going to miss the first part of the game. We weren’t too worried about that since we figured the kids wouldn’t make it through the whole game anyway.

Our first issue with the dome was there is no handicap parking anywhere. They don’t have their own garage. So, we end up parking about a half mile away. Not a huge deal, but definitely annoying.

We finally navigate the bumpy streets with Owen’s wheelchair and get to one of the doors. First thing we see is there is no ramp to get to the door. There were only two steps so we just picked Owen’s chair up to get in.

Once we get in the door some lady says, “Whoa, whoa… Can he walk?” In my mind there were a few expletives that I won’t post here. But seriously… He’s in a wheelchair. Not listening to my inner, much more blunt, voice I reply. No, he can’t walk. She says we have to walk around the stadium to another door to go in. At this point Brett and I were both already frustrated with the parking and what not. I ask her if its ok if we take Owen out of his wheelchair and carry him and pull the wheelchair up the escalator. Reluctantly she agrees, repeatedly telling me how they really are helpful with kids like Owen if we go to the right door.

Well, after coming up with a strategy to get Owen, his wheelchair and Laney up the escalator we head up to the next floor. Our tickets were on the fourth floor. We assumed once we got to the next floor we could just walk around the stadium on the inside and get to the handicap accessible side of the building.

As we walk around that floor I asked 3 or 4 people that worked there where the elevator was. Amazingly no one knew. How is that? Not even the First Aid guy knew. Finally we find an elevator marked as disabled and media only. They get us up to the 4th floor.

I will say this. The dome does have a lot of wheelchair accessible seating… once you get in. lol We find some open seats (the stadium was pretty scarce since it was a pre-season game) that weren’t already occupied by people who clearly didn’t need them.

We grab some food and enjoy the last of the game. Afterwards the trip out wasn’t too bad since we knew where the elevator was now. We hop on at the 4th floor to ride down to the bottom. First we stop on the 3rd floor and pick up three guys with beers. They clearly were no disabled or media, but whatever. Then we stop again on the 1st floor and pick up and guy in his late 20’s/early 30’s. He had some tics and some speech issues.

We get down to the ground floor and we all pile out. The last guy that got on tried to go out the door with his beer and the security guy stopped him. The guy replies, “Sorr… S.. S… S… Soorr rr rry” and makes his way out the door ahead of us. Once out the door, the guy straightens up, starts walking with a normal gait, gets his phone out of his pocket and calls his buddies.

As I’m walking I am just staring at this guy. I couldn’t believe he would pretend to be disabled to get down the elevator (one floor mind you). Brett and I were just in awe of this guy. Who does something like that? Very odd.

Overall all, despite all of the hassles we did have fun. We will be better prepared if we go to another game.

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This kid is unbelievable

September 6, 2012

I just had to blog this one from earlier tonight. Brett is at work and Laney was asleep. So, it was just me and Owen at the dinner table. We had just finished eating and he was having some mini oreos for dessert.

We were sitting here listening to music on Pandora with the iPad. All of a sudden I see Owen is choking. Like really choking. Not just a coughing because he swallowed something wrong. It was a, there was no noise coming out, no air coming out, type of choking.

I instantly reach over to pound on his back (which almost always works). Nothing happened. He was still choking. So, I snag him out of his chair and start performing the Heimlich. After a few seconds the cookie breaks free and he starts breathing again.

Just as he was barely starting to breath, with water still welled up in his eyes, he struggles to say, “new song”. What the hell? I just performed the heimlich on him to save his life and the first thing he says is “new song”.

Its like he never even choked. He was just concerned with what song was on the iPad. This kid is something else. lol

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One of the most frustrating things…

August 31, 2012

I think one of the most frustrating things about Owen is his lack of affection. I’m not sure if that’s due to the autism or his overall developmental delay from the hydrocephalus.

Every time I feel like we are having a moment…. I’m feeling super proud or he just did something really cute… I go in for a hug or kiss. Most times he’ll let me hug him or kiss him, but then turn around and bite me or grab my hair or something.

The only time he’s “snuggely” is right after he wakes up. So I always take full advantage. While I carry him to the front room he lays his head on my shoulder. I will linger and not put him down for a few minutes.

Laney at 8 months gives kisses and snuggles. It makes it really apparent how much Owen doesn’t do that. It’s hard.

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New Diagnosis

August 22, 2012

For a while now we have thought maybe Owen was on the Autism spectrum, but didn’t have confirmation and, quite honestly, given everything else, we weren’t sure if it was even worth pursuing.

Finally we had gotten to a point where Owen’s sensory issues and transition issues were beginning to become a problem. So, we decided to see if what we suspected was true and if they had some new strategies and techniques we could use to work with Owen.

Earlier today we had Owen’s official Autism evaluation at Touchpoint Autism Services. It has been confirmed that Owen does have Autism. We will have the official report and recommended strategies in a couple of weeks.

It’s funny how a diagnosis of Autism for some families would be heartbreaking, scary, detrimental, etc. But for us and everything we have been through so far we view it so much differently. To us it’s another answer that can help give us some better strategies to work with Owen. Almost a good thing really. lol

So with that being said we have a new medical condition to learn about and research. Something new to add to the list of discussion points in Owen’s IEP. Another team of therapists and specialists to list as a part of Owen’s support team.

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Reverse Cameras

August 17, 2012

Having a reverse camera on my phone has been a great. Owen LOVES to watch himself on the phone. So does Laney. I’ve got some of the cutest videos. Here are a couple of examples. 🙂